Thank you to EVERYONE who took the time to vote for The Gwendeloyn Strong Foundation to win the Chase Community Giving contest. You can see the post about it here. Thanks to your votes, and thanks to Chase for extending the winners to the top 6. While The Gwendeloyn Strong Foundation did not win the first place award of $1,000,000, they did win $100K to put towards the cure of SMA.
Wednesday, January 27, 2010
Congrats to The Gwendeloyn Strong Foundation!
Posted by Holly at Wednesday, January 27, 2010 0 thoughts
Monday, January 25, 2010
Not My Husband Monday!
Monday, January 18, 2010
Please Vote!
Hey Everyone -
This could be the most important thing you do today. Help find a cure!
Through the power of blog, I have recently become acquainted with a beautiful and inspiring woman who recently lost her 4 month old little angel, Makenzie due to a rare form of SMA. Before getting to know Kendra and her family, I knew very little about SMA, so I'm going to explain really quickly for those of you who do not know. SMA (Spinal Muscular Atrophy) is a genetic disease that kills more babies than any other inherited disease. While these children are born perfectly healthy, it's usually only a matter of months before their bodies start to fail them - and once it starts, it does not stop. These poor babies will need 100% assistance in eating, breathing, and swallowing. 50% of them die before they reach 1. 90% before they are 2.
I urge all of you with a Facebook account to vote over the next week to help them earn the money to find a CURE for this horrible disease that is killing otherwise healthy babies.
To vote, go to: To vote, go to http://VoteForSMA.com
Thanks for passing this along,
Holly
Here is some more information below:
“Researchers at UC Irvine are really REALLY close to a cure for SMA, but they need funding to push it towards FDA approval. JP Morgan Chase Bank has committed to donating $5 million dollars to non-profit organizations and through a Facebook voting system, the voting for the BIG prize $1,000,000 (yes, one million) starts today, Friday, January 15th, 2010. We are asking that everyone go to the polls and vote for GSF so we can win and donate the money to end this cruel disease.
This is important for one main reason, $1,000,000 towards SMA research could actually END THIS DISEASE. Not "get the ball rolling" on research, not "hope for a cure," but actually end it. And, most importantly in my eyes, it could save the lives of children who currently have SMA. The research that is so close to FDA approval is one that could affect babies who already have SMA, and could completely remove them from symptoms.
Here are some facts:
Dr. Kierstad (UC Irvine) has dedicated his life to spinal cord injuries. He has already successfully performed a lab experiment on mice that allowed the previously-paralyzed animals to literally get up and walk. He is now focusing on SMA research. It is his belief that a groundbreaking surgery could allow the body to re-build the proteins that are missing in children with SMA.
Money is holding back a cure. Other diseases, such as breast cancer and AIDS, have massive amounts of funding and research behind them, but "cures" are still unknown. The "cure" for SMA is just around the corner, but nothing can be done until the funds are there to continue the research.
SMA is the #1 genetic killer of children under two years of age, and 1 in 40 adults (unknowingly) carry the gene to pass it on.
Voting is open (Jan 15 - Jan 22) and each person gets one vote per day. This is an effort sheerly driven by people voting: the GSF needs every single vote it can get. So, please, please, please, PLEASE vote and spread the word to every person you know.”
Posted by Holly at Monday, January 18, 2010 0 thoughts
Sunday, January 17, 2010
1-8 thru 1-15
Posted by Holly at Sunday, January 17, 2010 0 thoughts
Labels: Life 365
Friday, January 8, 2010
My kids!
My nephews (and son) are the best...
Posted by Holly at Friday, January 08, 2010 0 thoughts
Monday, January 4, 2010
Not my child Monday
Posted by Holly at Monday, January 04, 2010 0 thoughts
Sunday, January 3, 2010
January 1-7
January 1st:
January 4th: Okay, I'm not a liar, so I'm going to confess that the picture of my Mom and Hunter was taken today (Wednesday). My mom grew out her hair specifically so she could cut it and donate it to Locks of Love, which she did on 1-4. The first picture is her braids that are ready to donate, and the second one, taken today is of her new short do! Cool, huh?
Posted by Holly at Sunday, January 03, 2010 0 thoughts
Labels: Life 365